Study References

Consortium home: http://www.afgen.org
MGH: http://www.ellinorlab.org/mgh-af-study/

Amish Complex Genetic Disease Research Program: http://www.medschool.umaryland.edu/endocrinology/Amish-Research-Program/Amish-Complex-Genetic-Disease-Research-Program/
HAPI study design paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2443415/

Clinic forms, questionnaires, and codebooks: https://www2.cscc.unc.edu/aric/cohort-forms-forms
Manuals: https://www2.cscc.unc.edu/aric/cohort-manuals

Study design: https://www.ncbi.nlm.nih.gov/pubmed/8921368
Study design 2: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3606015/
Asthma questionnaire: https://www.ncbi.nlm.nih.gov/pubmed/10518823
Asthma severity score: https://www.ncbi.nlm.nih.gov/pubmed/9130491
Pulmonary function testing: https://www.ncbi.nlm.nih.gov/pubmed/7663792

Home page: https://www.cardia.dopm.uab.edu/cardia-overview/overview-more
Manuals, clinic forms and questionnaires: http://www.cardia.dopm.uab.edu/exam-materials2

home page: http://www.arc.arizona.edu/?q=node/243

Study design: https://www.ncbi.nlm.nih.gov/pubmed/?term=29545482

Variable finder and more: https://sleepdata.org/datasets/cfs/variables
Manuals: https://sleepdata.org/datasets/cfs/pages/manuals
Data dictionaries: https://sleepdata.org/datasets/cfs/files/datasets
Redline, S., Tishler, P.V., Tosteson, T.D., Williamson, J., Kump, K., Browner, I., Ferrette, V., and Krejci, P. (1995). The familial aggregation of obstructive sleep apnea. Am J Respir Crit Care Med 151, 682–687.

Home page with links to study history, procedures, etc.: https://chs-nhlbi.org
CHS design paper: https://www.ncbi.nlm.nih.gov/pubmed/?term=1669507
Clinic forms and questionnaires: https://chs-nhlbi.org/forms/docindex
Data home page: https://chs-nhlbi.org/CHSData
Study design paper: http://www.ncbi.nlm.nih.gov/pubmed/1669507

Clinic forms and questionnaires: http://www.copdgene.org/phase-1-study-documents
Study design: http://www.copdgene.org/study-design

Study design paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3061609/

Study design paper: http://www.ncbi.nlm.nih.gov/pubmed/8651220
Study home page: https://dsgweb.wustl.edu/fhscc/

Home page: http://www.biostat.wustl.edu/fbpp/FBPP.shtml
Data summary: http://www.biostat.wustl.edu/fbpp/FBPP_data_materials.shtml

Table of procedures by cohort with links to forms, manuals, and code books: https://www.framinghamheartstudy.org/researchers/description-data/data/fhsphenotypicdata.xls
Clinic forms and questionnaires (side menu): https://www.framinghamheartstudy.org/researchers/exam-forms.php
Exam dates and ages for 6 FHS cohorts: https://www.framinghamheartstudy.org/researchers/description-data/data/tableofexams.pdf

Study design: https://pharm.ucsf.edu/burchard/research/study-populations

Variables: http://www.genestarstudy.com/Variables-Available.html
Study design: http://www.genestarstudy.com/Study-Population.html

Daniels, P.R., Kardia, S.L., Hanis, C.L., Brown, C.A., Hutchinson, R., Boerwinkle, E., Turner, S.T., and Genetic Epidemiology Network of Arteriopathy study. (2004). Familial Aggregation of Hypertension Treatment and Control in the Genetic Epidemiology Network of Arteriopathy (GENOA) Study. Am J Med, 116(10): 676-681.
FBPP Investigators (2002). Multi-center genetic study of hypertension: The Family Blood Pressure Program (FBPP). Hypertension. 2002 Jan; 39(1):3-9.

Study design paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2377400/
Study home page: http://www.biostat.wustl.edu/gensalt/gensalt_ini.html

Detailed information on specific covariates is available via PI of GGAF study

Study home page: https://dsgweb.wustl.edu/goldn/

Study design paper: https://www.ncbi.nlm.nih.gov/pubmed/?term=20609344
Study design paper: https://www.ncbi.nlm.nih.gov/pubmed/?term=20609343
Manuals, clinic forms and questionnaires: https://sites.cscc.unc.edu/hchs/manuals-forms

Variable finder: https://www.umc.edu/apps/files/biostats/1-7-JHS_Variables_Search.html
Clinic forms and questionnaires

Home page: https://ltrcpublic.com

Home page: https://thenationalmdsstudy.net/

Design paper: http://www.ncbi.nlm.nih.gov/pubmed/12397006
Overview and demographics: https://www.mesa-nhlbi.org/aboutMESAOverviewProtocol.aspx
Inventory of procedures by exam number (with sample sizes) and timeline: https://www.mesa-nhlbi.org/aboutMESAStudyTime.aspx
Clinic forms and questionnaires: https://www.mesa-nhlbi.org/ex1forms.aspx#exam
Manuals and protocols: https://www.mesa-nhlbi.org/manuals.aspx
Exam dates (password-protected): http://www.mesa-nhlbi.org/MesaInternal/documents/MESAExamDates.pdf
Data documentation and dictionaries (password-protected): http://www.mesa-nhlbi.org/MesaInternal/MesaData.aspx
The Multiethnic Study of Atherosclerosis: http://www.sciencedirect.com/science/article/pii/S2211816016307128?via%3Dihub
Legacy of MESA: https://www.sciencedirect.com/science/article/pii/S2211816016307098?via%3Dihub

Home page: http://benchtobassinet.com/
Study design paper: https://www.ncbi.nlm.nih.gov/pubmed/?term=23410879

Study design paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4383641/
Study home page: https://reds-iii.rti.org/Participants/InternationalSites/Brazil.aspx

SAFHS study info: http://www.txbiomed.org/departments/genetics/genetics-detail?p=24

Some study design info in this paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4292846/

Study design paper: https://www.ncbi.nlm.nih.gov/pubmed/22952805

Study design paper: https://www.ncbi.nlm.nih.gov/pubmed/?term=18070814

About: https://www.whi.org/about/SitePages/About%20WHI.aspx
Clinic forms, questionnaires, manuals, consent forms, and more: https://www.whi.org/researchers/studydoc/SitePages/Home.aspx
Data home: https://www.whi.org/researchers/data/Pages/Home.aspx
General study home: https://www.whi.org
References: https://www.whi.org/researchers/bibliography/SitePages/Home.aspx
Key design references:
- Hays, J., Hunt, J.R., Hubbell, F.A., Anderson, G.L., Limacher, M., Allen, C., and Rossouw, J.E. (2003). The Women's Health Initiative recruitment methods and results. Ann Epidemiol 13, S18-77.
- The Women's Health Initiative Study Group. (1998). Design of the Women's Health Initiative clinical trial and observational study. Control Clin Trials 19, 61-109.

AFGen – Patrick Ellinor

Amish – Brackie Mitchell

ARIC – Eric Boerwinkle

BAGS – Kathleen Barnes

Boston EO COPD – Ed Silverman

CARDIA – Myriam Fornage / Lifang Hou / Donald Lloyd-Jones

CARE - Childhood Asthma Research and Education Network - including ATGC studies: CLIC, PACT, TREXA, BADGER - Fernando Martinez

CCAF – Mina Chung / John Barnard

CFS – Susan Redline

ChildrensHS_GAP – Frank Gilliland

ChildrensHS_IGERA – Frank Gilliland

ChildresHS_MetaAir – Frank Gilliland

CHS – Bruce Psaty

COPDGene – Ed Silverman

CRA – Scott Weiss

Diabetes Heart Study – Kent Taylor / Jerry Rotter

Family Heart Study – Kent Taylor / Jerry Rotter

Family Blood Pressure Program – including GENOA (Sharon Kardia / Jennifer Smith), HyperGEN (Donna Arnett), SAPPHIRe, and GenNet

FHS – Vasan Ramachandran

GALA II/SAGE II – Esteban Burchard

GeneSTAR – Rasika Mathias

GENOA - Sharon Kardia

GENSalt – Jiang He

GGAF - Michiel Rienstra

GOLDN – Donna Arnett

HCHS/SOL - Robert Kaplan / Kari North

HVH – Susan Heckbert / Nick Smith

JHS – Adolfo Correa

LTRC - Ed Silverman

MDS - Matt Walter

MESA – Jerry Rotter / Steve Rich

nuMoM2b-Heart Health Study

PCGC_CHD - Bruce Gelb / Christine Seidman

REDS-III Brazil – Brian Custer / Shannon Kelly

SAFS – John Blangero

Samoan – Stephen McGarvey

Sarcoidosis - Courtney Montgomery

WGHS - Christine Albert

WHI – Charles Kooperberg